Dear Future Mom... Life with Down Syndrome

  • By: Joni and Friends
  • March 16, 2015
  • 5 Comments
  • Radio, Video Archives

When an expectant mother hears the words "Your child may have Down syndrome," her heart and mind are flooded with thoughts and emotions … Thoughts such as, "Will my child live?" or "How are we going to care for a special needs child?" But the one question just about any expectant mother of a child with Down syndrome will ask is, "What kind of life will my child have?" Clouded by fears of the unknown, cultural stigma, and family pressures, many mothers struggle to make sense of such a difficult diagnosis. But who better to answer the question of quality of life than those who know this condition best — children and young adults with Down syndrome. You can watch their response in this heartening video titled “Dear Future Mom.” It’s a reminder that children with Down syndrome can make their parents proud, love their moms and dads, and have fun like other kids do! So share it with your friends on Facebook or Pinterest!

If you are a mother or know one whose child has just been diagnosed with Down syndrome—we want to pray for you and provide you with resources, so please write us a note or post a comment below. And don’t forget to check out our radio page this week as we highlight Down syndrome in honor of World Down Syndrome Day this March 21st.

 
 

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5 Comments

 
I have a 14 year old son who happens to have Down Syndrome and is the joy of our life and family! He has taught us so much and drawn us closer to each other and to our heavenly father. Because of his special abilities I wrote a book in Aug called "It's More Ups than Downs" 11 families tell their stories of how wonderful the blessings are of having a child with Down Syndrome in their lives. These stories range in age from 9 months to 64 years of age. I would love to send Joni and friends a copy of the book. Much Joy, Amy Troyer http://www.amazon.com/ts-More-Ups-Than-Downs/dp/1612442463/ref=sr_1_1?ie=UTF8&qid=1427474064&sr=8-1&keywords=amy+troyer
  • March 27, 2015
  • 9:59 a.m.
  • Amy Troyer
I couldnt read the small print, but the faces said it all! Those are Heavenly children and they are still a child who needs love an to be nutured. I am sure the Lord look upon them and smile and say 'they are mine'.
  • March 17, 2015
  • 4:56 p.m.
  • Maud
I have been a caretaker/teacher at a facility for adults with challenges and it is the best job I have ever had. My daughter and I also have the pleasure of being a Special Olympic volunteer. This job is the best job ever. These are God's angels on earth to me. They are just the best. They are so caring, smart, and sensitive. No one is perfect we all have some challenges just some are just more obvious then others. Knowing and believing in God he makes no mistakes. Each and everyone of us have a purpose.
  • March 16, 2015
  • 11:48 p.m.
  • Shelly
This video goes so well with your topic. Blessings to all of you. https://youtu.be/z4bgAkQf4Xo
  • March 16, 2015
  • 8:11 p.m.
  • Linda
hi, my name is Gabriela and I have a son named Phillip, 7 years old with Trisomy 9 mosaic. Down syndrome is trisomy 21 so my son has an extra chromosome 9 instead of the 21 as Down syndrome. As of right now we know of about 150 kids world wide, that made dealing with his diagnosis and condition even harder since there was no research done and not a lot of information about it. As a parent I did not know what to expect and even now we have a lot of unknowns in front of us. Many families are pushed to abort as these kids are considered " incompatible with life". You can find a video of Phillip laughing with Ernie on YouTube to see his beautiful smiles and how he loves life.
  • March 16, 2015
  • 12:06 p.m.
  • Gabriela