Joni and Friends Blog

Parenting a Child with a Terminal Diagnosis

When Jim and Deanna Achilles’ daughter was diagnosed with the progressive disease Ataxia-Telangiectasia (A-T) at 8 years old, they received heartbreaking news: there is no cure. With no way to stop degeneration, Jim and Deanna were introduced to disability and left walking the line between life and death.

Two decades later, Ryn Achilles has outlived doctors’ predictions and is now 28 years old. But as A-T has progressed, it has been unrelenting. Today on the podcast, Jim and Deanna are talking openly about the grief and challenges they’ve experienced while hanging in the balance between life and the expectancy of death. Listen as they share the hope they have found through their hardships and the encouragement they would give other parents raising a child with a terminal diagnosis.

Subscribe to the Joni and Friends Ministry Podcast


Your Real Home…From a Higher Perspective

For the past twenty-five years, Heaven has inspired us to live well on earth even as we long for eternity. Drawing on Scripture, Joni Eareckson Tada answers the deepest questions of our hearts about what heaven will be like, who we will see there, and who we will be there.

Order Today!